The PSC Forum 4 was held in Washington, DC on November 8, 2022
Materials
Presentations
Welcome and Introductory Remarks
Veronica Miller, Forum for Collaborative Research
Session I: Global PSC Efforts, Natural History Cohorts and Data Sharing
Use of RWD/E in Drug Development
Bettina Hansen, Erasmus MC Netherlands
ICR Network and WIND
Mary Vyas, PSC Partners Seeking a Cure
Session II: Patient Perspectives and Patient Reported Outcome Measures (PROMs)
EASL PSC Clinical Practice Guidelines: The Patient Perspective
José Willemse, Dutch Liver Patients Association
PSC Partners PROM
Donna Evon, The University of North Carolina at Chapel Hill
Session III: Challenges in Clinical Trial Design and Endpoints
Industry Roundtable
Session IV: New Science
The Future of Liver Atlasing in Health and Disease
Sonya MacParland, University of Toronto and University Health Network
Diana Nakib, University of Toronto and University Health Network
Discussion with Mathieu Petitjean
Mathieu Petitjean, PharmaNest, Inc
Session V: Looking to the Future–Next Steps
Discussion
